A preliminary note on the particular characteristics of the cleft palate disability

The author of the IndependenceChick blog refers to the mainstream as temporarily abled. Doesn’t really fit those who have a cleft. Personal example: I’m a high school and college letterman in the distance events (admittedly in small schools); climbed Mt. Hood a couple times (requires crampons and ice axe); ran marathons.

The nub of the story could be detected in the situation at the undergraduate school I attended. The three other clefted people there did not have a cleft lip. They could pass. They were not treated as disabled.

Our disability consists in the pervasive social attitude of those who can see us. Our disability is social.

It would help if the civil rights revolution was popularly understood as including us. It would help if we were popularly understood as being in a protected class, since the formal mechanisms of “civil rights” unfortunately leverage identity.(1)

Another topic, as things are, and particularly in the holiday season, gift-giving-and-the-outsider seems to be an undiscussed aspect of cleft prejudice. The person we give a gift to uneasily feels that we are presuming that we are their equal in doing so. But not giving the gift violates a social norm. It’s a cleft Catch-22. The existing social system’s neglect of people having a cleft here, as in many places, lacks:

1. A social standard for required social gift-giving
2. A social language or mode of discourse for us is missing. If the issue is race, one can say “racist,” “racism.” The proposed equivalent, “ableist,” “ableism” is feeble. (Would “cleftphobic” serve as “transphobic” does?)
3. In any case, we’re not supposed to talk about it. (I remember the feeling of struggling against a taboo when starting this blog years ago.)
4. The last post observed that cleft people can’t use the communitarian solution because their 1-in-700 status effectively means that the average cleft person doesn’t have a community
5. Political action is hindered by the same factor: 1-in-700
6. Democratic public-spiritedness should help the clefted population, but again as the last post implies, this is now much more the era of power, not ethics/civic virtue

A personal experience with institutions, which may be more than anecdotal: In the fall of the year I graduated from college, I entered a midwestern university English Department’s Ph.D program, having a national scholastic fellowship. At the department’s welcoming party, when the department’s representative saw me, he got a look of unbelieving disgust. In the classes, it was clear that I was not welcome.

At a left coast university, in encounters as a graduate student (I entered on an M.A. from a city university just starting its graduate program), as an auditor, and in an adult education class, an attitude having nothing to do with scholastic ability prevailed.

My impression, which you may not agree with, is that where the stigmatized disabled are concerned, some public higher education institutions care more about their impression than about their education responsibilities to their students.

Concluding notes: A google search on “cleft palate” still

1. Produces entries about us, not by us
2. Helps the parents of children having a cleft (who certainly need it) by providing corrective surgery and other needed services during the growing years but
3. Does not discover entries:
4. By us
5. About local, state, or federal programs or funds after age 18, to deal with widespread discriminatory attitudes and practices; severe isolation and unavailability of social contact and community; lack of political influence; and concealed exclusion from institutions which fear they will be tarnished by association with someone who has a cleft

/******/

(1) The Founding, in beginning the Preamble with “We the People,” implied that identity was not supposed to matter. In the same spirit, Justice Harlan’s dissent in Plessy: The Constitution knows nothing of class and regards man as man where his civil rights under the Constitution are concerned (quoted from memory) prefigured MLK’s own anti-identitarian content-of-their-character, not color-of-their-skin formula.

Unfortunately, since the 14th Amendment’s equal protection clause seems to be currently instituted as protected class, it would really help if the American public came to believe we are in a protected class.

Cancel culture and the pervasive social discrimination against the stigmatized disable.

This is the 80th anniversary of Pearl Harbor. The America of that time, up until around 1980, had characteristics that were more friendly to those who are different. Those who opposed McCarthyism during the Eisenhower administration, for example, supported the individualism of the right to march to the sound of a different drummer. The same respect for the right to be different made them oppose “guilt by association.” They opposed groupthink, which is now valorized as “solidarity.” They opposed “end justifies the means” rationalization in the name of principled argument, representing individual values rather than group aggrandizement. The chief characteristic of the America of the Great Generation was friendship. The chief characteristic of what America has become is enmity.

This is particularly disastrous for people who are thought to “offend” because of birth defects.

Sociologist Erving Goffman noted that disabled and other stigmatized people have a “spoiled identity.” 

Christophe Van Eecke on “Cancel Culture and the Logic of Torture” in Quillette: “Nevertheless, a very similar effect is obtained by destroying the victim’s social world. This explains why it is important  for shaming and cancellation to be public events—they are meant to isolate the accused from the community. This isolation is experienced as physical as much as spiritual. The destruction of the world that is achieved in torture by the destruction of the body and its relationship to its immediate physical surroundings is achieved in cancel culture by the infliction of an abject state of loneliness, which equally cuts the victim off from the world.” (Emphasis added)

Unlike other targeted minorities, the clefted, being a minuscule population (1 in 700), and having no governmental or other societal programs once they become adults, do not have a community. We can be, as previous posts have noted, attacked on the grounds of “What’s a misfit doing at a party?” without fear that anyone will come to our support.

Van Eecke continues: “This experience has been most eloquently described by Hannah Arendt in her analysis of The Origins of Totalitarianism. Arendt argues that inducing a state of loneliness in people has the effect of destroying all sense of community, reducing individuals to isolated atoms, and thereby preparing them, through abject fear, for totalitarian rule. As Arendt explains, “Totalitarian domination … bases itself on loneliness, on the experience of not belonging to the world at all, which is among the most radical and desperate experiences of man.” As Arendt points out, “Loneliness is not solitude. Solitude requires being alone whereas loneliness shows itself most sharply in company with others.” A lonely man “finds himself surrounded by others with whom he cannot establish contact or to whose hostility he is exposed … In solitude, in other words, I am 'by myself,' … whereas in loneliness I am actually one, deserted by all others.” Solitude can be enjoyed—it is often even a luxury—whereas loneliness is terror.” (Emphasis added)

The disabled “finds himself surrounded by others with whom he cannot establish contact or to whose hostility he is exposed … In solitude, in other words, I am 'by myself,' … whereas in loneliness I am actually one, deserted by all others.”

Van Eecke: “The function of public shaming and cancellation is to inflict loneliness—it cuts the victim off from the family of man. It makes him an abject untouchable and has as its only aim his total removal from society. This is achieved by publicizing the cancellation, which ensures that this person will lose his job, his livelihood, his social circle, and will almost certainly not find another job in the foreseeable future. In close analogy to physical torture, where everyday objects (a chair, the food one eats) and even the body itself are turned into hostile weapons, the shared world is turned into a hostile environment for the publicly shamed person, who is now shunned by everyone. The very people who were only recently friends and colleagues are now the weapons that inflict pain through their absence, confirming the victim’s isolation.”

We know that sooner or later you will be humiliated. “The function of public shaming and cancellation is to inflict loneliness—it cuts the victim off from the family of man. It makes him an abject untouchable and has as its only aim his total removal from society. This is achieved by publicizing the cancellation, … ”

Van Eecke: “In this way, the security a person feels within the human community is destroyed and the world is made hostile. It effectively reduces the limits of one’s being to the limits of the body. Any person who has ever suffered severe public shame will acknowledge that the limits of one’s body are a thin shell between oneself and a hostile environment.”

Sooner or later you will be humiliated. Suffer “severe public shame … ”

/******/

The language of the new regrettable enmity society, and its cancel culture, map a great increase in the already discriminatory tendency of the mainstream toward those born having a birth defect.