The first selection notes that in discussions of those whose civil rights are commonly violated, disabled people or often left out.
Jonathan Allen, on
the deep divisions exposed by the fight over Rep. Ilhan Omar, in the form of “the list of groups targeted by hatred”: “Rep. Doug Collins, R-Ga., [noted] that Wiccans, Mormons
and disabled people had been left out.” (Emphasis added)
Disfigured faces can provoke a fear reaction, leading to bullying and other social tyranny:
Fear of people with facial disfigurements is a
common phobia, yet, unlike other fears -- of height, of water, of the
dark -- it is seldom discussed, perhaps because so much popular culture,
from The Iliad to Saw V, pivots upon this
fear. Perhaps it is assumed: of course you are afraid of the man
without a face. Who wouldn't be?
Or perhaps because, unlike fear of high
places, water or the dark, teratophobia -- fear of disfigured people or
of giving birth to a disfigured baby, literally 'fear of monsters' --
has a living object: the injured, burnt, unusual-looking
people themselves. Drawing attention to the flinching reaction they
often receive, the stares and mockery that are a routine part of their
daily lives, can seem an additional cruelty, the sort of vileness
enjoyed by schoolyard bullies.
Identifying friend and foe has been a survival skill. A disfigured face, perhaps not seeming human at all, can trigger an instinctive fear:
Why are distorted faces so frightening? Freud
classified certain objects as 'unheimlich,' a difficult-to-translate
word akin to 'uncanny': strange, weird, unfamiliar. Waxwork dummies,
dolls, mannequins can frighten us because we
aren't immediately sure what we're looking at, whether it's human or
not, and that causes anxiety. A surprisingly large part of the human
brain is used to process faces. Identifying friend from foe at a
distance was an essential survival skill on the savannah,
and a damaged face is thought to somehow rattle this system. ...
The psychologist Irvin Rock demonstrated this
in his landmark 1974 paper 'The perception of disoriented figures.' Rock
showed that even photos of familiar faces -- famous people like
Franklin D Roosevelt, for instance -- will look
unsettling when flipped upside down. Just as, if you tip a square
enough it stops being a square and starts becoming a diamond, so
rotating a face makes it seem less like a face. The mind can't make
immediate sense of the inverted features, and reacts with
alarm. A bigger change, such as taking away the nose, transforms the
face severely enough that it teeters on no longer seeming a human face
at all, but something else.
The author himself, who thought he was prepared, experiences “horror”:
That isn't a theoretical example picked out of
the air. On another visit to the Craniofacial Center, I enter Seelaus's
examination room to be introduced to a patient. He turns in the chair,
and is missing the middle part of his face.
There are four magnetic posts where his nose will go, and below it, a
void revealing smooth yellow plastic. My eyes lock on his eyes, I shake
his hand and say some words.
A half-hour later, standing on the elevated
train platform, I still feel ... what? 'Harrowed' is the word that
eventually comes to mind. Why? There was no surprise. I'm no longer a
child but an adult, a newspaper reporter who has
spent hours watching autopsies, operations, dissections in gross
pathology labs. I was expecting this; it's what I came here for. What
about his face was so unsettling?
Maybe seeing injured faces compels an observer
to confront the random cruelty of life in a raw form. Maybe it's like
peeling back the skin and seeing the skull underneath. Like glimpsing
death. Maybe it touches some nameless atavistic
horror. ...
Randall H James was born in Ohio in 1956. His first surgeries were done over the next couple of years at
Cincinnati Children's Hospital by Dr Jacob Longacre, a pioneer in modern plastic surgery.
Our instincts often betray us into making an “automatic
connection between inner person and outer appearance”: “A disfigured person is a retard”:
"He was like a second father to me because I
saw him so much," says James, who didn't celebrate a Christmas at home
between the ages of 3 and 13. School holidays were for operations.
Summers too.
When little Randy began school, his teachers
in the city of Hamilton made a common mistake, the sort of automatic
connection between inner person and outer appearance that has been the
default assumption since history began.
"The teachers assumed I must be stupid," says
James, who was put in a class with children who had learning
disabilities -- until teachers realized that he was actually very
bright, only shy, and missing an ear, which made it harder
for him to hear. He was allowed to sit in the front of the room, where
he could hear the teacher, and his grades soared. ...
The disability version of the Heckler's Veto: “You might make the students nervous”:
As a student at the University of Kentucky,
James applied to be a residence hall adviser, someone who assists other
students in navigating dorm life. The supervisor who rejected him
candidly told him that his odd-looking ear could
put others off.
"'You might make the students nervous,'" James
recalls him saying, then paused, the pain still obvious after 40 years.
"These were my classmates."
In the past, disfigured people were often subject to genocide: “A couple hundred years ago, people
born with craniofacial conditions, they were just putting them in a
bucket of water”:
We are a society where people thrive or fail
-- in part, in large part -- because of appearance. The arrangement of
your features goes far in deciding who you are attractive to, what jobs
you get. Study after study shows that people
associate good looks with good qualities, and impugn those who aren't
attractive. Even babies do this, favoring large eyes, full lips, smooth
skin. Billions of dollars are spent on plastic surgery by people who are
in no way disfigured, just for that little
extra boost they feel it gives to them, gilding the lilies of their
attractiveness.
How do people with unusual appearances fit
into such a world? For most of recorded history, children born with
disfigurements were wonders, portents or punishments. If they were
allowed to live. "A couple hundred years ago, people
born with craniofacial conditions, they were just putting them in a
bucket of water," said Dr David Reisberg, an oral plastic surgeon at the
Craniofacial Center.
“Those that we call monsters are not
so to God”:
But even then, astute observers saw beyond
externalities. Michel de Montaigne in 1595 encountered a child conjoined
to the half-torso, arms and legs of an undeveloped twin (what we would
now call a parasitic twin), displayed by its
father for money. Montaigne noted: "Those that we call monsters are not
so to God, who sees in the immensity of His work the infinite forms
that He has comprehended therein."